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Jessie Journal

My Jessie Journal:: Hi Sweet Pea, it’s daddy! So proud of you and what you created out of your loving and caring heart. Your JoyJars started in our kitchen, we then moved to our garage…

Damian, age 8, leukemia all

Damian is a very shy and sweet 8-year-old who was diagnosed with Leukemia all this year. Leukemia all is a type of cancer of the blood and bone marrow that affects white blood cells. It is…

Jessie Journal

My Jessie Journal:: Hi Sweet Pea, it’s daddy! Love you so much and miss your face so much!!! It’s been a crazy week of some incredible encounters that REALLY made me miss you and feel…

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Guest Blog: Children Shouldn’t Run Out of Options

After multiple relapses of Medulloblastoma, brain cancer, our hearts have been unable to recover after hearing the life-altering words from our oncologist that there were no more treatment options available for our then ten-year-old daughter…

Zakariah, age 5, medulloblastoma

Zakariah was diagnosed in April of this year with medulloblastoma, one of the most common cancerous brain tumors in children.  At just 5 years old, he has already had 6 weeks of radiation therapy, 3 brain…

Public Policy and Brain Tumor Advocacy Updates From…

Below are highlights of news and developments in brain tumor advocacy and public policy compiled by NBTS Research & Advocacy Manager Kacey Troy Ribnik and Director of Advocacy Lainey Titus Samant: New Increases for Medical Research Funding Congress…

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Top Five Blogs: July- September 2018

Below is a recap of the most popular brain tumor news and blog items from July through September on the NBTS site, as measured by YOUR readership and views. We hope you’ll enjoy catching up…

Guest Blog: How to Talk to Your Kids…

As a father with an aggressive brain cancer, I’ve opted against elaborate metaphors and in favor of candid speech when talking about cancer with my children. In May 2016, I underwent an awake craniotomy to…

When lighting strikes 3 times: Mother of 3…

With three children diagnosed with brain tumors in their 20’s, Catherine Stryker is a veteran caregiver and a remarkable woman. One daughter had an acoustic neuroma, Catherine’s son had an oligoastrocytoma that became a glioblastoma…

Choosing the Right Brain Tumor Clinical Trial

Clinical trials are necessary to advance potential new treatments and demonstrate effectiveness. For patients who decide to participate in a clinical trial, finding the right clinical trial for them can be challenging and there is…